Tribal Life

Linda Edwards, Writer

Archive for November 2018

2/2…or experience counts

Today is a double header: biopsy in the morning, CT scan in the afternoon. I’m home from the biopsy, which seemed to go according to plan. This will be the second CT scan I’ve had in three days. This one, of my lower torso, includes contrast dye injected through an IV, as well as a liquid version of contrast dye that I’m to drink before the procedure. Two bottles. Sounds […]

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1/2

I followed the nurse, Angela, into what first appeared to be a store room.  There was a hospital bed, but the bed almost looked like part of the extra junk that had landed there, along with the supply cart with “ULTRASOUND” scribbled in black marker.  Every surface was cluttered with stuff.  The sink directly across from me, in full view as I sat on the bed, had some blue-colored substance […]

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I’m learning the lingo

Today’s CT scan confirmed I am not allergic to contrast dye (yes!) It also documented several enlarged lymph nodes in my chest cavity. An enlarged lymph node is what they referred to as a “mass” in the chest xray I had previously. The lymph nodes range in size, from about a half inch to a couple of inches. At least one of them is pushing on an area of my […]

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Surreal

It was about 6:45 pm. My cell was ringing and the caller ID read, “Dr. Shoustari,” the physician I saw a few hours earlier. Oh. About a week and a half ago, I went to the doctor to have a swollen area in my neck looked at. My regular physician wasn’t in the office, so I saw her colleague. Dr. Usmani expressed concern, said the lump could be cancerous, and […]

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Mum’s the word

Things seem so vague right now. We had a big family gathering last weekend to celebrate my mom’s 90th birthday – it would have been a bummer to share anything until we know something more specific.  I’m a pretty transparent person.  It helps me to process things by talking about them. Other than Don though, I’ve only told a few people at work and in my MFA program, mostly because my […]

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Are angry lymph nodes serious?

Twenty six years ago, I had a sonogram when I was pregnant with my son Donald. I remember having to pee due to the full bladder it required. Mostly, I remember being excited to see the baby growing inside me. That’s not what I felt this morning as I followed the technician into the procedure room. What will it show?  The technician was talkative, obviously trying to keep me relaxed. I craned my […]

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Wait…what?!

Some things go together really well. Peanut butter and jelly. Bert and Ernie. Chips and dip. Thelma and Louise. “I feel a mass in your neck” and “It’s huge” are not meant to be together. But those are the two phrases I heard from Dr. Usmani as he examined me. “It could be cancer,” he said. Wait…what?! Dr. Niloufar Shoushtari, my regular primary care physician, was out of the office […]

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Welcome to My Blog

I’ve always wanted to write a blog but never felt confident sharing. What do I have to say? Who will want to read it? Then, on December 4, 2018, I was diagnosed with Hodgkin Lymphoma. Creating this blog and sharing my thoughts is helping me process what I’m feeling. I hope sharing my journey will help others to face challenges that come their way. Please share your journey with me […]

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